Five-month-old boy from Texas, born with virtually no skin today, may 24, will undergo major surgery, during which surgeons will cover the areas of his body skin grown in a lab using his own cells.
Surgery will take place at Texas Children’s Hospital in Houston, where the baby is taken care of with APR.
Jabari gray was born on new year’s eve, doctors diagnosed him with Epidermolysis bullosa (epidermolysis bullosa), a rare genetic skin disease.
It is characterized by blistering and erosions on skin and mucous membranes, which appear with minor mechanical trauma or spontaneously.
Any mechanical trauma, and sometimes without it, in the physical, chemical and thermal effects on the skin of the child there are bubbles and it peels off, leaving an open wound which needs to be constantly covered with special dressings to protect from re damage.
Such children are often called “butterfly children”, metaphorically comparing them sensitive skin with butterfly wing.
From Jabari is the most complicated case. He didn’t open eyes, no skin on the torso and arms, it is only on the legs and head.
Earlier in may, his medical team was sent a skin biopsy of the baby in Vericel Corporation in Cambridge (state of Massachusetts), where the researchers used their own cell boy for growing new skin.
“There are 24 hours from the moment the skin leaves the controlled environment here in Cambridge, up to the point when she needs to be placed on the patient”, – told Fox 26 John Hopper, medical Director Vericel Corporation.
The boy’s mother, Priscilla Maldonado, calls to pray for her son and that the surgery was successful.
To follow the history of the “baby butterfly” on the page Facebook “Ja bari”s Journey”, which is his family.
5-month-old “baby butterfly” born without skin, raised her in the lab from his own cells updated: May 24, 2019 author: Alina Dykman